We’re Moving!

The registry will be offline as we move to our new home in LA within the Terasaki Research Institute.
Come back soon, as we expect the move to take place before the New Year.

2015 Registry Update Cycle

Dear Colleages,

The XIV International Small Bowel Transplant Symposium will take place June 10-15, 2013 in Buenos Aires, Argentina. Because the Symposium takes place soon after our usual data entry deadline (May 31st), the 2015 data entry deadline is March 15th, 2015.

We have included new data collection elements from our online database at the request of the community and will continue to receive your data in multiple formats (paper forms, encrypted excel files, etc.)

Individual Centres will be contacted with additional information shortly. Please don’t hesitate to contact the Registry Manager should you have any questions in regards to the 2015 registry update:

Max Marquez, MD MPH – Registry Manager –

Tel: +1 (416) 340-4800 x8891
Fax:+ 1 (416) 595-5013
Email: max.marquez@intestinaltransplantregistry.org

HLA Data Collection Survey

Dear Colleagues,

HLA information has been a long term interest of the registry and many our affiliated centres. The recent advances in the field have made it a hot topic in transplantation that may potentially have a great impact on intestinal transplant practices.

We are in the process of integrating HLA information into our data collection cycle and want to hear your input. Please complete the following short survey (<5 mins) developed by the ITR under the direction of Dr. Robert Venick and the auspice of the Scientific Committee of the Intestinal Transplant Association.

Thank you for your participation.

Click here to participate in the Survey

 

2013 Registry Report is Now Available!

The 2013 Intestinal Transplant Registry (ITR) Report is now available and has been forwarded to program directors of participating centers.

If you ARE an Intestinal Transplant Association (ITA) Member you may now download it directly from the members section of the ITA/TTS website. Please don’t forget to complete an ITA Citation/Report Request Form every time you use our report; this allows us to better understand the use our report is given worldwide.

If you are NOT an Intestinal Transplant Association (ITA) member and would like to receive a copy, please complete an ITA Citation/Report Request Form. The ITA Council will individually evaluate the merits of your request before providing you a copy of the ITR Report.

Thank you all participating centers. Your invaluable contributions have made this possible!

My Transplant Nurse: A Perfect Match Contest

The Transplant Nurses Day Essay Contest allows patients to nominate an ITNS transplant nurse who has made a difference in their lives. The winning essay will be featured in a future issue of the ITNS Insider newsletter. In addition, the winning nurse will receive a recognition award, a letter will be sent to his or her supervisor, and he or she will be acknowledged on the ITNS website and in an ITNS E-Updates membership e-mail.

Who can enter?

Any transplant patient currently or formerly under the care of a transplant nurse who is a member of ITNS can participate. Patients should ask their nurse or transplant coordinator if he or she is a member of ITNS.

 What do I need to submit?

  • A copy of the completed entry form.
  • A 300-500 word essay focusing on the topic “My Transplant Nurse: A Perfect Match.” Each essay must be original, authentic, unpublished, and the sole property of the entrant.
  • Entries should be emailed to info@itns.org

 View the contest details and entry form and submit an entry before theMarch 14, 2014 deadline.

ITR Date Entry Deadline Extension

Dear Colleagues,

The International Small Bowel Transplant Symposium in Oxford will take place in June, three months earlier than our usual September meeting. We have set May 1st as the data submission deadline in order to present at the meeting. Some centers have had issues with REB submission and the deadline has been extended until May 15th, 2013.

Please keep in mind that the deadline is in order for us to be able to process and present preliminary data at the symposium. We will do our best to include any data entered after the deadline in the presentation. We also encourage all centers to continue providing data even after the deadline as it will be used to complete our 2013 annual report.

Please don’t hesitate to contact us if you have any questions.

Reports and Citations

For over 25 years the registry has collected relevant clinical information on behalf of our community. Our reports have been instrumental in world-wide evaluation of outcomes as well as in policy design and evaluation.

We look forward to continuing to contribute to the community and kindly request to be notified of any use given to the data contained herein by completing an ITR Citation Request Form each time our data is referenced or reproduced. This allows us to gain a better understanding of our impact in the small bowel transplant community and to better tailor our data collection to the ever evolving needs of the field.