The Registry is a collaborative effort among all centres performing intestinal transplantation. Data is collected every two years from each centre. It is then compiled, verified, and analyzed to ensure the information is accurate and complete.

The Registry collects the following types of information from all intestinal transplants:
demographics, such as gender and age of recipient
pre-transplant diagnosis leading to transplant
pre-transplant status (the patient's condition before transplant)
type of transplant (bowel; bowel & liver; or "cluster transplant")
post-transplant status and complications
anti-rejection drugs taken by patients
donor information

By analyzing this information, we can continue to improve the results of intestinal transplantation so more patients can be transplanted with improved graft survival and a better quality of life.